It can be hard to find information about CMML, which affects just four out of 100,000 people a year. This doctor does a good job explaining it to someone like me, who has learned about the disease on Facebook, or talking with a doctor for 15-20 minutes every few months.
The story of my experience with the rare blood and bone marrow cancers MDS (myelodysplastic syndromes) and CMML (chronic myelomonocytic leukemia). Everyone has a different combination of affected genes and blood components, so every experience is different, so this story is mine and mine alone, and will be told my way, (unscientifically!) but I hope it adds to your search for information about the diseases.
Friday, September 4, 2026
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My Platelets Drop
For more than two years I felt a certain amount of pride when they told me, "Your numbers all look stable," as if I had something ...
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(Caveat: this post and this blog do not constitute medical advice. I'm just recounting my experience in case it's of value to you or...
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My last good run was during covid. I know because I remember being far from home and pulling a bandana over my face when I ran near other pe...
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Before I switched treatment centers and doctors, I thought I was going to die. But not from MDS. I thought I was going to die before I got t...